Happy Sudden Cardiac Death of the Young Awareness Day!

The Sudden Arrhythmia Death Syndromes (SADS) Foundation is celebrating Monday, February 4, 2013 as the official Sudden Cardiac Death of the Young Awareness Day.

The SADS Foundation is an organization dedicated to saving lives and supporting families of children and young adults who are predisposed to sudden death due to heart abnormalities. The Foundation provides information, support and hope to thousands of families with children living with the health threat and is a leader in education, research and advocacy for people with genetic heart arrhythmias that can cause sudden deaths.

This day is to recognize two very important populations in the country: newborns and the youth. The goal is to remind us to take a moment to think about and support the families we know who have a child with a SADS condition or those have lost a loved one to a heart abnormality.

“We want to take this opportunity to provide information, support and hope to thousands of families with children living with a SADS condition,” says VP of Development and Marketing Laura Wall. “To recognize this day is a huge stride towards increasing awareness and education about heart abnormalities so together we can save lives.”

For more information on how you can help or donate to the SADS Foundation, please visit www.StopSADS.org.

New Year’s Resolution – Get Tested for SADS Conditions!

When it comes to heart arrhythmia abnormalities, most people do not know what or have not even heard of SADS conditions. That is, until they hear in the news about their local senior basketball superstar of his high school team who suddenly dropped dead on the middle of the court during an intense and exciting basketball game.

So make it a part of your New Year’s Resolution to get tested and become educated with SADS conditions this year!

The Sudden Arrhythmia Death Syndromes (SADS) Foundation is an organization dedicated to saving lives and supporting families of children and young adults who are predisposed to sudden death due to heart abnormalities. The Foundation sets out to provide information, support and hope to thousands of families with children living with the health threat. The SADS Foundation is a leader in education, research and advocacy for people with genetic heart arrhythmia to increase awareness of the causes of sudden deaths so families can live long happy and healthy lives.

The major warning signs of SADS conditions include the following:

• Family history of unexpected, unexplained sudden death in a person under age 40 – including drowning suddenly
• Fainting (syncope) or seizures during exercise, excitement, or being startled
• Consistent or unusual chest pains and/or shortness of breath during exercise

For more information on the SADS Foundation or how you can help, please visit www.StopSADS.org.

For questions on support and health, please call 1-800-STOP SAD or 801-531-0937

4th Annual Girls (and Guys) Night Out

When: Thursday January 31, 2013 from 7:00 PM to 10:00 PM CST
Where: Little Ricky’s, 540 Lincoln Avenue, Winnetka, IL 60093

Please join Jeannie and Doug for the evening in celebration of Jeannie’s birthday. Feel free to bring a friend, the more the merrier!

All tips from the drink purchases will benefit the SADS FOUNDATION in memory of Rebecca Righeimer. Lovely Rebecca passed away at age 4 on December 27, 2003 due to a SADS condition. To learn more about Rebecca, please click here.

If you are unable to attend but still wish to donate, kindly forward a check made payable to the SADS FOUNDATION and please mail the check to the following address:

Design Studio
903 Green Bay Road, #2N
Winnetka, IL 60093

Click here to RSVP to the event!

2013 SADS Foundation Annual International Conference

Mark your calendars!

The SAD Foundation, in conjunction with Fairfield Medical Center and The Ohio State University, is prepping for another great year of world-leading education and discussions on preventing unexpected sudden death in the young.

This CME/CEU accredited program will feature various lectures and workshops of world-renowned doctors, physicians, and researchers from across the country for both the medical professionals and community members to attend.

Date: November 1 – 3, 2013

Place: Columbus, OH

Featured Speakers: TBA

Tentative Agenda:

• Friday, November 1: Continuing medical education for field professionals
• Sat-Sun, November 2-3: Community education and awareness for general public

Check back for more updated information! For further questions and comments, please email sads@sads.org or call 801.531.0937.

2nd Annual Texas Hold ‘Em Tournament and Benefit Dinner

The second annual Texas Hold ‘Em Tournament and Benefit Dinner for the SADS Foundation is held in memory of Race Salazar who passed away suddenly and unexpectedly due to an undiagnosed SADS condition.

Join friends and family of Race Salazar for an evening of dinner, entertainment, poker & prizes, silent auction, raffles and so much more!

Tickets are $45 for dinner only or $50 for a $5 poker buy-in.

Event Date: 01/07/2012
Event Time: 6:00 p.m.

Event Location: Folsom Community Center, 52 Natoma Street
Folsom, CA 95630

Visit the Race to Keep Hearts Beating Foundation’s website for more informaiton and to purchase tickets.

SADS Benefit Concert Series – LIVE 333!

CredibleMeds and the SADS Foundation have joined forces to present a benefit concert series featuring acclaimed roots music singer/songwriter Jeff Black titled “Live in 333” throughout 2013.

By partnering together, CredibleMeds and the SADS Foundation have created a groundbreaking program that connects SADS patients – who have an inherited risk of sudden death – with those who support them through music, a universal voice.

These benefit shows will be presented quarterly throughout 2013 and streamed live online in 333, Black’s virtual stage to the world. 333 is named for the infamous speakeasy that once occupied Black’s cellar in historic Nashville. Each show will feature Black and a special music guest.

The inaugural show was streamed live on Saturday, Dec. 1 and featured legendary Americana artist David Olney.

So stay tuned for the next concert! You can also sign up on the emailing list to be notified for future concerts at https://www.facebook.com/pages/SADS-Sudden-Arrhythmia-Death-Syndromes-Foundation/194665999753?sk=app_384490801624951.

For more information on the SADS Foundation, please visit www.stopsads.org.

Help Us! Federal Research Funding at Risk!

ACTION ALERT: Federal Research Funding at risk!

Help us today and take action! More federal funding cuts would be devastating to the public health system that keeps families healthy and supports vital research to improve treatment and overall quality of life for all SADS patients and families!

http://archive.constantcontact.com/fs141/1100357195496/archive/1111747552616.html

We want your feedback for the conference!

For those of you who were able to attend the 6th SADS Foundation International Conference in Salt Lake City, Utah, our SADS Foundation board of directors and staff we want to thank you for attending our wonderful event! It was a pleasure to meet you all and we hope you enjoyed your time with us in Salt Lake City.

Please take a minute to fill out this short survey to provide valuable feedback on how to make SADS events even more successful in the years to come.

https://www.surveymonkey.com/s/F53FB3C

And for future conferences, mark your calendars now!

The 2013 SADS Foundation’s 7th International Conference will take place next October in Columbus, Ohio! We look forward to seeing you soon!

If you have any questions, please do not hesitate to let us know. For more information on the SADS Foundation or how you can help out, please visit us at www.StopSADS.org or you may call us at 801.531.0937

Help Us Stop Sudden Cardiac Arrest!

PETITION: Help Stop Sudden Cardiac Arrest – Get AEDs in Schools and Public Places!

To: US Secretary of Education and the US Department of Health and Human Services

We, the undersigned agree with the Sudden Cardiac Arrest Coalition and its member organizations that automated external defibrillators (AEDs), along with emergency action plans should be in all schools and places of public gathering, including sports venues, shopping malls and places of business.

By signing our petition you lend your voice to the voiceless victims of SCA and join those fortunate few who have survived a SCA in saying “No more needless deaths; AEDs save lives and should be in our schools and places of public gathering.”

To commit to our cause, visit http://www.causes.com/causes/225843-sudden-arrhythmia-death-syndromes-sads-foundation/actions/1681092.

The SADS Foundation is an organization dedicated to saving lives and supporting families of children and young adults who are predisposed to sudden death due to heart abnormalities. The Foundation provides information, support and hope to thousands of families with children living with the health threat and is a leader in education, research and advocacy for people with genetic heart arrhythmias that can cause sudden deaths.

Highlights from one of October’s Biggest Event in Utah

6^th INTERNATIONAL SADS FOUNDATION CONFERENCE

SALT LAKE CITY – The Sudden Arrhythmia Death Syndromes (SADS) Foundation hosted its most successful 6^th Annual International Conference last week to educate families and professionals in the medical field about how to prevent unexpected sudden death in the young.

The SADS Foundation is an organization dedicated to saving lives and supporting families of children and young adults who are predisposed to sudden death due to heart abnormalities. The Foundation provides information, support and hope to thousands of families with children living with the health threat and is a leader in education, research and advocacy for people with genetic heart arrhythmias that can cause sudden deaths.

Hosted at the Marriott University Park Hotel by the University of Utah, the conference was one more significant step towards achieving the SADS Foundation’s goal of increasing the awareness of heart abnormalities for families and medical professionals.

“We couldn’t have done this without the help of our devoted sponsors, volunteers, staff members, and the community,” says VP of Development and Marketing Laura Wall. “It was really inspiring to see everyone come together with passion to support a great cause.”

To find out more information on the SADS Foundation or how you can help, please visit www.StopSADS.org.

ABOUT SADS FOUNDATION

Formed in 1992, the SADS (Sudden Arrhythmia Death Syndromes) Foundation’s mission is to save the lives and support the families of children & young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. We are committed to promoting the early detection and treatment of these conditions throughout the world. The Foundation distributes materials internationally through grass roots efforts in order to teach families, educators and medical professionals about SADS conditions. For more information visit www.StopSADS.org or call .800.STOP-SAD (800.786.7723). Find us on Facebook at www.causes.com/causes/225843 and follow us on Twitter at www.twitter.com/SADSFoundation.